Publicación de Ace Alzheimer Center Barcelona

Join UCL for a pivotal workshop aimed at enhancing inclusive participant recruitment practices in ageing and dementia-related research. Black, South Asian, and other minoritised ethnic groups in the UK face a significantly higher risk of developing dementia, yet they are vastly underrepresented in research studies. This disparity limits our ability to provide tailored advice, improve healthcare quality, and develop effective interventions. On May 21st, 2024, UCL is hosting roundtable discussions with key stakeholders, including researchers, NHS trust representatives, funders, and community leaders from Black and South Asian communities. Researchers are looking to speak with: - People from Black or South Asian backgrounds who have been affected by dementia (but do not have dementia themselves), for example having a close friend or family member with dementia. - Community groups who support people affected by dementia from Black and South Asian backgrounds. Click here to register your interest: https://bit.ly/3UlljOT

The National Institutes of Health (NIH) announced yesterday that the Preeclampsia Foundation’s Take 10 for Preeclampsia Research program has been selected as a top 10 finalist in its Build Underserved Populations (UP) Trust Challenge. The national competition seeks to identify and support new and promising community-based strategies that leverage engagement to build trust and help increase participation by historically underserved populations (UP) in disease research and the adoption of medical care to detect, treat, and monitor diseases, conditions, and disorders. The Take 10 for Preeclampsia Research program, launched in May 2023, serves as a call-to-action designed by and for Black women to share their birth experiences with researchers through their enrollment in the foundation’s Preeclampsia Registry. As a Build UP Trust Challenge finalist, the Take 10 program will receive $45,000 to fuel engagement activities to reach communities hardest hit by adverse outcomes and encourage women to share their experiences: https://lnkd.in/efxGZC7P #AllInToTake10 #BlackMamasMatter #MaternalHealth

Knowledge is power, especially when it comes to your health! Why accessibility matters: - Empowerment: Awareness enables people to make informed decisions and take charge of their well-being. - Inclusion: Everyone has a right to equal access to health information. - The European Accessibility Act: This upcoming legislation emphasizes the importance of clear and accessible healthcare information. Our Partnership with Prostate Cancer Research UK: A Real-World Example We're proud to partner with Prostate Cancer Research UK, who share our commitment to accessible information. By integrating ReadSpeaker's webReader and docReader on their website, they offer users: - Lifelike Text-to-Speech (TTS) - Accessible PDFs & Word Documents This is just one example of how accessible information can empower individuals to take control of their health. Let's work together to make health information a right, not a privilege! #WorldHealthDay #HealthForAll #HealthcareAccessibility #ReadSpeaker #Empowerment #Inclusion

The ReaCH event is like a health research mixer, blending different disciplines to whip up holistic health solutions – now that's a recipe for success! As a Mind-Body Medicine (MBM) enthusiast and a somatic therapy advocate, I'm all for these mix-and-match approaches. They're not just about shaking hands across disciplines; they're also about giving mental health the VIP seat it deserves in the health world. Looking ahead, I'm rooting for health research to keep playing matchmaker with diverse fields. When mental health and somatic practices join the party, the result is more than just understanding issues; it's about crafting whole-person solutions. Think of it as health research doing a bit of yoga – stretching to include physical, mental, and societal well-being. Kudos to ReaCH for spotlighting this collaborative groove! I'm jazzed up about seeing more of these holistic health shindigs that bring mind, body, and society together for a healthier tomorrow. Here's to more research raves that hit all the right notes!

Yesterday was #WorldHealthDay. In light of this year's theme, "My Health, My Right," NIA is proud to work alongside entrepreneurs with groundbreaking ideas in #HealthyAging, Alzheimer’s disease (AD), and AD-related dementias (ADRD) research, which are fundamental in benefitting the lives of aging adults. Learn more about our work and funding opportunities: https://go.nih.gov/e6epOI5

Enrollment strategies for Alzheimer’s disease (AD) research should reflect the diversity of the larger population to ensure that the outcomes observed in the research setting are likely to also occur in the real world. This blog post discusses the current status of representativeness in AD research and presents strategies to provide equitable access to this research. #ALZresearch #healthequity #HeadlandsResearch https://lnkd.in/gApyUBbW

We are so proud to be featured as a change maker in the Springboard Enterprises x Accenture "State of Women's Health" report! https://lnkd.in/eKA5cUPg, It is such an honor to be recognized for our work with ovarian cancer, women's health, and more. The "State of Women’s Health" report dives into the current state of women’s health, highlighting key areas where innovation and funding is urgently needed. Traditionally, this field has faced challenges such as limited funding, inadequate research, and pervasive misconceptions. A considerable gap in public awareness and response persists. This report aims to close this gap by increasing awareness, motivating action, and promoting advancements in funding, research, and innovation. Join us in amplifying this report and driving continued change! 👏

March is Ovarian Cancer Awareness Month, a time dedicated to raising awareness about a silent and often overlooked health concern affecting women.   At Feature Medical, we understand the importance of proactive healthcare, highlighting the significance of early detection and preventive measures.   While we typically focus on providing top-tier medical concierge and wellbeing services to companies and their employees, we recognise the need to address specific health concerns that impact women.   Follow @Macmillan @TargetOvarian for the latest information on the symptoms and how to get involved with fundraising this month. Always remember to speak to your GP if you are concerned about symptoms.   #OvarianCancerAwareness #EmpowerHerHealth #FeatureMedical #FeatureMedicalLife

📢 With limited funds & time, it is critical that research is prioritised that is most meaningful to those impacted by it. This is why we are undertaking a James Lind Alliance Priority Setting Partnership to identify the top 10 research priorities for Inherited Retinal Disease - from the perspective of those most impacted by these conditions. We are inviting individuals w/ an Inherited Retinal Disease, caregivers and family members, and health professionals working in this space to tell us what research questions (from a list of around 40) are most important to them to have answered. Participate now to guide the future of IRD research! 👁️ https://lnkd.in/gCguTfST Anai Gonzalez-Cordero Claire Wakefield Lauren Ayton Matthew Simunovic John Grigg Robyn Jamieson Meredith Prain (she/her) PhD Emily Shepard Hollie Feller Deafblind Australia Guide Dogs NSW/ACT Save Sight Institute Retina Australia

🤔 Are We Doing Enough for Alzheimer's Awareness? Our latest blog post delves into the alarming lack of awareness about current Alzheimer's treatments. Voters desire more effective and accessible options, underscoring the need for ongoing research and public education. Key Insights: 👉Low awareness of treatment options 👉Desire for more effective therapies 👉Importance of health care providers in education Discover the insights from our 2024 national poll and learn how health care providers can play a pivotal role in bridging this knowledge gap. 🔗 https://loom.ly/LynEEaQ #AlzheimersResearch #HealthcareInnovation #ThePulse #MedicalUpdates