Applications for the 2024 EHDN/MDS (ES) Fellowship are now open! We aim to motivate and facilitate the training of young professionals working in HD through the sharing of knowledge and experience. Fellows selected for the programme will spend six weeks working in a highly regarded, multi-disciplinary HD clinic in Europe. For more information and details on how to apply, please see https://lnkd.in/eR_MgWvr You can read about some of the experiences of past fellows in previous issues of EHDN News: https://lnkd.in/eGKZATUb https://lnkd.in/eghkVXer
European Huntington's Disease Network (EHDN)
Gemeinnützige Organisationen
Advancing Research, Conducting Trials, Improving Care
Info
The EHDN is a nonprofit research network committed to advancing research, facilitating the conduct of clinical trials, and improving clinical care in Huntington's disease (HD). Through the EHDN a platform has been created such that basic scientists, clinicians, patients and families can collaborate on academic and industry studies to fulfil its mission. The EHDN is supported by and collaborates closely with CHDI Foundation, Inc. As a network of stakeholders in HD, the EHDN offers its members the opportunity to take a lead and propose, conduct and publish studies. Anyone who has an interest in HD, including those affected directly by the disease, may join the EHDN and, in so doing, make a personal contribution to HD events and research.
- Website
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http://www.ehdn.org/
Externer Link zu European Huntington's Disease Network (EHDN)
- Branche
- Gemeinnützige Organisationen
- Größe
- 201–500 Beschäftigte
- Hauptsitz
- Ulm
- Art
- Nonprofit
- Gegründet
- 2003
- Spezialgebiete
- Clinical Trials, Research, Neurology, Huntington's Disease, Neuropsychology und Movement Disorders
Orte
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Primär
Wegbeschreibung
Ulm, DE
Beschäftigte von European Huntington's Disease Network (EHDN)
Updates
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Congratulations to Professor Sarah Tabrizi on her incredibly well-deserved election to the US National Academy of Medicine in recognition of her vital work in Huntington's disease. Read more here: https://lnkd.in/gXfSqCT9
National Academy of Medicine Elects 100 New Members - National Academy of Medicine
https://nam.edu
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EHDN is recruiting for an Administrative Manager to support the EHDN/Enroll-HD Management Team. The role will provide assistance to EHDN/Enroll-HD management team members located in the UK and Europe. The post-holder will be primarily responsible for administrative support tasks, and may be asked to provide support for specific project management tasks as required. Please see the attached job description and if you would like to apply, send a CV and cover letter (in English) to [email protected]
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Congratulations to Factor-H for the hugely well-deserved recognition of their work from Amgen (2024 Amgen/MIT Solve award) and MDS (Public Service Award). Read more here: https://lnkd.in/erW_44Ut and https://lnkd.in/eNA4fRCQ Ignacio Munoz-Sanjuan - this really is huge 😍
Factor-H is Awarded the 2024 Amgen Prize!
https://factor-h.org
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European Huntington's Disease Network (EHDN) hat dies direkt geteilt
🇵🇹Neuropsychology Hospital Career | Clinical Expertise, eHealth Consultant_ management | Lecturer, Researcher & Neuroscience Ph.D student
*Attended EHDN & Enroll-HD International Congress: -- The European Huntington's Disease Network (EHDN) researcher meeting and Global Congress rewarding the Enroll-HD multicenter observational study by the CHDI Foundation international, took place at Strasburg between 12th -15th of September (2024) and was an excellent opportunity to learning more, establish contacts and development partnerships between stakeholders from all continents, combined with excellent lectures by Principal Investigators such as Prof.ª Cristina Sampaio (CHDI Chief Medical Officer); Prof.º Joaquim Ferreira (University of Lisbon); Prof.ª Sarah Tabrizi, MD PhD FMedSci FRS (Huntington Center at University College of London); Prof.º Saul Martinez Horta (Movement Disorders Unit at Hospital de la Santa Creu I Sant Pau, Barcelona) and Prof.ª Filipa Júlio (Vice-President of the Portuguese Huntington Association since 2014). An honorable mention to Huntington’s patients and their families/caregivers and patient Associations who have greatly contributed and disseminated knowledge through work communities around all over the world. -- It has been a pleasure to collaborate with Prof.ª Cristina Costa, Principal Investigator in the Enroll-HD Study at Neurology Department at Hospital Prof. Dr. Fernando Fonseca (Unidade Local de Saúde de Amadora/Sintra) who has greatly encouraged this consultation and new data for research. And also Madalena Esteves our Ph.D Research Associated and Language Area Coordinator !. -- I also had the opportunity to participate in a focus-group on behalf of Working Group for Cognitive Phenotypes by European Huntington's Disease Network (EHDN) to accelerate better understanding about neuropsychology assessments and diagnosis.* AC
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EHDN & Enroll-HD 2024 was an event to remember! The November issue of EHDN News will cover the meeting and we'll share lots of more photos - watch this space. It was amazing to see you there 😍#HDCommunity #HuntingtonsDisease
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EC Elections 2024 – Vote Now & Shape the Future of the EHDN! Find out about the candidates in EHDN News:https://lnkd.in/e_DF59gZ and https://lnkd.in/eDVTqUw7 Vote here: https://lnkd.in/eQHe-Uzz Voting is open NOW and closes on Wednesday 11th September 2024 at 23.59 CET.
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The July issue of EHDN News is now online. Highlights include our tribute to Dr Ira Shoulson, a tremendous individual who is sadly missed by the HD community and far beyond. Click here: https://lnkd.in/e_DF59gZ
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It's time to register for EHDN & Enroll-HD! Click here for details on registration and abstract submission: https://ehdn.org/ehdn2024/ If you have any questions please email: [email protected]
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