This week's #FollowFriday spotlight is on Shweta Association from #India! They are committed to raising awareness and support for individuals living with #vitiligo. Their mission is to empower and inspire confidence through education, advocacy, and community engagement. ✨ They recently hosted an incredible fashion show during World Vitiligo Day that celebrated beauty in diversity and showcased the stunning confidence of those living with vitiligo. This event was a vibrant display of strength, resilience, and style, breaking barriers and challenging societal beauty standards. Check out some highlights from the show: https://lnkd.in/eSGTWhxA Let’s show our support and join in on their mission to change the narrative around vitiligo! Website: https://www.myshweta.org/ Facebook: https://lnkd.in/g3_Xyqk Instagram: https://lnkd.in/eX6jW4Ae #GlobalSkinMemberLove #MYSHWETA #VitiligoAwareness #BeautyInDiversity
GlobalSkin - International Alliance of Dermatology Patient Organizations
Wellness and Fitness Services
Ottawa, ON 1,957 followers
A Global Alliance Serving Patient Organizations to Improve the Lives of Dermatology Patients Worldwide.
About us
The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) envisions a world in which people living with dermatological diseases and skin traumas can easily access the care and treatment they need, when they need it, and can live without stigmatization, persecution, or economic disadvantages due to their conditions. GlobalSkin is a not-for-profit organization working with more than 165 patient association members ─ located in over 50 countries representing more than 60 disease areas ─ to improve the lives of those affected by dermatological conditions throughout the world by: - Initiating dialogue and advocating for access to new and existing treatments, and dermatological care to improve patients’ quality of life; - Raising the awareness of the incidence of, and the challenges for, people living with serious dermatological diseases to create better understanding; - Supporting our Members, not-for-profit dermatology patient organizations, through education, global campaigning, sharing of best-practices and beneficial networking opportunities to strengthen support for patients and build a strong, inclusive movement; - Building special focus communities; and conducting patient–initiated research. We appeal as one voice to the World Health Organization and other key influencers to recognize the debilitating nature of dermatological disease so that more resources for research and treatment options are made readily available to those afflicted and in need of help. The common thread through these important initiatives is credible data, which we will collect in the first-ever global patient-initiated 'impact of skin disease’ research project, expected to have a profound and lasting impact on key decision-makers. By collecting data from the dermatology patient perspective to represent various real-life conditions around the world, the dermatological community will gain better awareness, making it easier to truly help patients.
- Website
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https://www.globalskin.org
External link for GlobalSkin - International Alliance of Dermatology Patient Organizations
- Industry
- Wellness and Fitness Services
- Company size
- 2-10 employees
- Headquarters
- Ottawa, ON
- Type
- Nonprofit
- Founded
- 2015
- Specialties
- Skin Health, Dermatology Patient Alliance, patient organization, advocacy, dermatology, skin disease, eczema, psoriasis, vitiligo, skin cancer, rare disease, acne, Hidradenitis suppurativa, albinism, birthmark, Pemphigus & Pemphigoid , Alopecia , XERODERMA PIGMENTOSUM, and Epidermolysis Bullosa
Locations
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Primary
Get directions
43 Florence Street
Ottawa, ON K2P 0W6, CA
Employees at GlobalSkin - International Alliance of Dermatology Patient Organizations
Updates
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EURORDIS has launched a new Rare Barometer survey on the impact of living with a rare disease on daily life. This survey is open to all people living with a rare disease and their close family members worldwide until September 8th. As an associate member of EURORDIS, GlobalSkin encourages all patient organizations within the RareDERM community to participate. Share your daily experiences to help advocate for equal rights and inclusion for everyone with a rare disease. Take the survey in 25 languages here: tiny.cc/RB_DailyLife Spread the word using the communication toolkit: https://bit.ly/3WiwyYo #RareDisease #RareBarometer #EURORDIS #PatientAdvocacy
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Thank you to all GlobalSkin Members for voting in the Board of Directors election. The new GlobalSkin Board has met and selected the Executive Committee for 2024-2025. Michelle Capon will take on a new role as Secretary, joining Marc Yale, Ritu Jain and David McMahon in their roles on the EC. We'd also like to extend a warm welcome to our newest Board Director, Toni Roberts from DEBRA South Africa. Toni joins Guillermo Gutierrez, Tina Mesarič, Tran Hong Truong, Maya Tulpule and Murray Turner on the Board. We are grateful to all Board Directors for sharing their time and expertise with our organization. Learn more about all our Board Directors here: https://lnkd.in/gSUhBfG4 #GlobalSkin #Leadership #BoardofDirectors
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Less than two months to go until World Atopic Eczema Day! Don't forget to utilize our useful resources as you plan your campaigns around this crucial awareness day. Download the resources now at https://lnkd.in/gps6rqKN #AtopicEczemaUnfiltered #AtopicEczemaDay #WorldAtopicEczemaDay #WAED2024 #EczemaAwareness #GlobalSkin
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This week, we're turning our #FollowFriday member spotlight on the Canadian Skin Patient Alliance (CSPA)! The CSPA is a beacon of hope for people living with skin conditions across #Canada. They’re not just about providing support – they’re about transforming lives through advocacy, education, and community engagement. Their mission is to empower patients, advocate for change, and spread awareness. Website: canadianskin.ca Facebook: https://lnkd.in/eVV9BZtq Instagram: https://lnkd.in/e9ZEfw3X Twitter: https://lnkd.in/etVS2TJk #CSPA #CanadianSkinPatientAlliance #Eczema #GlobalSkinMemberLove
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We're excited to share that GlobalSkin has been published in the Journal of Investigative Dermatology! GlobalSkin co-hosted a European roundtable with the ESDR earlier this year on under-researched skin diseases, and the insights are now available in the journal for all to see. Read now: https://bit.ly/3LtSGtC #GlobalSkin #Dermatology #Research #HealthcareInnovation
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GlobalSkin's Patient Expert Scholarship 2025 is LIVE! This exclusive microgrant program by GlobalSkin is designed to support patient leaders in joining the 2025 EUPATI Patient Expert Training Program. The application portal is open from now until July 19 for GlobalSkin Members to apply. Apply before it’s too late! Check your email for details. #GlobalSkin #PatientExpertScholarship #EUPATI #PatientAdvocacy
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Today's #FollowFriday Member Spotlight is on International Topical Steroid Addiction Network (ITSAN) from #USA! ITSAN is dedicated to raising awareness about Topical Steroid Addiction (TSA) and Red Skin Syndrome (RSS). They provide invaluable support and resources for individuals suffering from these conditions, advocating for safer treatments and better understanding in the medical community. What They Do: 🔍Offer comprehensive information and resources on TSA and RSS. 🔍Provide a supportive community for those affected by these conditions. 🔍Advocate for research and education to improve patient care. Learn more and join their mission: Website: https://www.itsan.org/ Facebook: https://lnkd.in/e-A3dmGf Instagram: https://lnkd.in/eJgNYJCR Twitter: https://lnkd.in/ej3zt7Fb #ITSAN #TopicalSteroidAddiction #RedSkinSyndrome #AtopicDermatitis #Eczema #GlobalSkinMemberLove
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GlobalSkin's Patient Expert Scholarship 2025 is launching next week. The application portal will be open from July 15 - 19. This exclusive microgrant program by GlobalSkin will support patient leaders to join the 2025 EUPATI Patient Expert Training Program. Don’t miss this amazing opportunity to advance your journey as a patient expert and advocate. For details, please check your email. #GlobalSkin #PatientExpertScholarship #EUPATI #PatientAdvocacy
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Sign-up for the July 24 advocacy webinar hosted by the Patient Engagement Forum (PEOF), featuring Ritu Jain, GlobalSkin Board Director from Debra Singapore. Click on the link below to register: https://lnkd.in/gyA2dBjj
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