European Federation of Crohn's and Ulcerative Colitis Associations

The European Medicines Agency (EMA) has published its annual report for 2023, showcasing their vital contributions to public and animal health in the EU. This comprehensive report delves into EMA's strategic initiatives and priority areas, providing an overview of their work throughout the year. 📲 Discover EMA's work in 2023 here: https://lnkd.in/dERizcgQ #EMA #AnnualReport #PublicHealth #AnimalHealth #CancerMedicines #DataDrivenMedicine #Transparency #EFCCA

We're pleased to share The European Association of Hospital Pharmacists (EAHP)'s latest position paper on procurement, adopted during their 54th General Assembly. This document emphasises the indispensable role of hospital pharmacists in ensuring timely access to high-quality and cost-effective medicines and medical devices for patients. 🔑 Some Key Recommendations: 🔹 Involve hospital pharmacists and healthcare professionals in public procurement for better efficiency, quality and safety. 🔹Ensure hospital pharmacists' participation in HTA bodies to refine methodologies and enhance patient access. 🔹Move beyond single-winner procurement models; avoid lowest-price-only selections. 🔹Leverage hospital pharmacists’ expertise in selecting, procuring and using biosimilars and ATMPs. 🔹Implement environmental sustainability criteria in medicinal product procurement. 📲 Read the full position paper here: https://bit.ly/4bWNSaQ #MedicineShortages #HospitalPharmacists #Procurement #Healthcare #Sustainability #EAHP #EFCCA

🚀 Groundbreaking Discovery in IBD Research! 🚀 We are thrilled to announce an exclusive interview with Dr. James Lee, whose revolutionary research into a major cause of Inflammatory Bowel Disease (IBD) has been published in the Nature journal. 🌟 The findings hold significant promise for advancing our understanding and treatment of IBD. 👉 Don't miss out on this enlightening conversation! https://lnkd.in/eX-JKWF6 #IBDResearch #GroundbreakingDiscovery #EFCCA #NatureJournal #HealthcareInnovation #Crohns #UlcerativeColitis #ScienceBreakthrough

Celebrating Global Unity: World IBD Day 2024 Report Released! 🌍📲 We are excited to share the World IBD Day 2024 Report, a comprehensive document detailing the inspiring activities and collective efforts of our members, IBD activists, healthcare professionals and diverse stakeholders during this year's event, held on 19 May and throughout the month. Our campaign "IBD Has No Borders" has resonated globally, thanks to the concerted efforts to disseminate and promote numerous activities from patient associations and supporters. We sincerely thank all organisations and individuals for their contributions to this year's resounding success. United We Stand 💜 👉 Read and Download Report: https://lnkd.in/dTjwZBRG #WorldIBDDay2024 #IBDCare #EFCCA #IBDAdvocacy #Healthcare #InflammatoryBowelDisease #GlobalHealth

🌍 We proudly present the Conference Report titled “Uniting for Access to IBD Care” detailing the significant outcomes of our recent event in Mexico City. Held on May 17, 2024, as part of EFCCA's World IBD Day 2024 campaign, "IBD Has No Borders," this roundtable brought together patient groups and Health Care Providers worldwide, to discuss actionable steps for improved care. 📄 This report highlights key discussions, outcomes, and future steps, making it an essential document for the entire IBD community. We invite you all to review the full report and join us in our ongoing efforts to achieve our shared vision of enhanced IBD care globally. Together, we can make a meaningful difference in the lives of those affected by IBD.💜 👉 Read and Download (English) https://lnkd.in/djT-dsZu 👉 Read and Download (Spanish) https://lnkd.in/dgaTym4n #WorldIBDDay2024 #IBDCare #EFCCA #IBDAdvocacy #Healthcare #InflammatoryBowelDisease #GlobalHealth

Last week, FIBROTARGET co-coordinator Gianluca Matteoli (KU Leuven) presented at the International Congress of Mucosal Immunology (#ICMI2024) in Copenhagen, Denmark. The meeting focuses exclusively on the interface between the immune system and the environment at mucosal surfaces, and serves as a space for cross-fertilisation among 🔬 scientists, clinical researchers and industry professionals working on pathways of immunity and #inflammation at mucosal surfaces. Dr. Matteoli spoke about identifying pathogenic #fibroblasts in #IBD and molecular targets 🎯 to disrupt their function, using data from human and functional experiments in mice. 👏 Great work done to him and his team for advancing our cause in improving prevention, care and treatment for fibrostenosis and intestinal fibrosis in IBD👏

The second issue of the METHYLOMIC Project Newsletter is online! We are excited to share updates on our progress with all our stakeholders. This newsletter is released quarterly, aiming to keep everyone informed about the significant developments and achievements within our consortium. We hope you enjoy this edition and have a wonderful summer break: https://lnkd.in/e_Xk-9wn #METHYLOMIC #epigenetics #Crohn

Meet Sara, the new LEGO minifigure with a stoma bag! Sara is more than just a toy—she helps to raise awareness, reduce stigma and promoting acceptance for those living with Inflammatory Bowel Disease (IBD) and ostomies. Thank you, LEGO, for your commitment to inclusivity and diversity! #IBDawareness #IBDpatientcommunity #ostomies

📣 Call for Participation: New Digital Intervention for IBD in Teenagers Researchers at Aston University, UK, have developed a new evidence-based, theory-driven digital intervention to support IBD treatment plan adherence in 13-17-year-olds living in the UK. Co-designed with young people, ASSIST-IBD, includes interactive activities and videos to support IBD management. There are also resources for parents/guardians. They’re looking for young people and their parents/guardians to use ASSIST-IBD for 12 weeks and share their feedback. 👉Interested? You can learn more here: https://lnkd.in/dQexW9xT or email Dr. Screti at [email protected]. #IBD #Research #HealthTech #TeensIBD

Three questions for Sarah van Zon, PhD candidate clinical research, Amsterdam UMC: ❓ What makes this study unique compared to other research being conducted on Crohn’s disease? 💁♀️ “This study is unique because it focuses on the predictive power of DNA methylation patterns for therapy response. While most Crohn’s disease researches emphasize genetic mutations or inflammatory biomarkers, this study investigates the role of epigenetic biomarkers, leading to a new perspective on therapy response prediction. In addition, this research emphasizes the importance of epigenetic modifications in the pathophysiology of complex diseases such as Crohn’s disease and Psoriasis, leading to advancements in precision medicine.” Read more: https://lnkd.in/eDGs9Gmq #METHYLOMIC #epigenetics #crohn #colitis #psoriasis